Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
Contact the author of the petition
This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..
Guest |
#272016-11-14 00:01Everyone needs to have a better quality of life, if there is a drug out there to help these children then they should be entitled to it |
Guest |
#282016-11-14 00:05Disgraceful this little girl can't get the meds she needs for her cf |
Guest |
#292016-11-14 01:34Why can't we do everything in our power to give anyone, especially children, the best medical help possible |
Guest |
#302016-11-14 12:55Because I have a little friend in Ireland and her name is Chloe Ryan she needs your help please xxxx |
Guest |
#32 Re: Re:2016-11-14 20:02Yes they do! They contacted us to sign this petition. (I'm her aunt) |
Guest |
#332016-11-14 20:14My daughter Molly is also one of the 18 children who should get Kalydeco. Please keep signing x |
Guest |
#352016-11-14 20:39I signed because they are children just starting their life's and it shouldn't have to be like this they should receive the drug without fighting for it |
Guest |
#362016-11-14 20:46Friends. The children are our future. We are supposed to look after them and protect them. |
Guest |
#37 Re: Re: Re:2016-11-14 20:52Great! Thank you xxx |
Guest |
#382016-11-14 20:56Just trying to help all the children whom is suffering from this terrible illness. |
Guest |
#422016-11-14 21:30Because every sick child should b given the drugs that are available to improve their quality of life if they have a long term illness |
Guest |
#432016-11-14 21:39My daughter aged 4 needs this drug to make life changing difference to her beautiful life my moos xxxx |
Guest |
#472016-11-14 22:29Because we as a country should value or kids livestream do everything we can to keep them healthy and alive |
Guest |
#492016-11-14 22:47for our buddy Eadaoin and all who have C.F. This treatment is compulsory, not a luxury. |
Guest |
#502016-11-14 22:53A child's health and quality of life can't, and should never, be measured by monetary cost |
|
PETITION OPPOSING ARROWHEAD AIRPARK IN CASS COUNTY MISSOURI
📜 PETITION TO THE PARLIAMENTARY COMMITTEE ON THE HEALTH CARE COMPLAINTS COMMISSION (HCCC)
Oppose Islamophobia Definition
Keep the Saturday evening jazz concerts at the Roxbury Library
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, Ohio
Cancel NPC's Car Park Management Contract in GMV West
Relocate The Shed
Proclamation for a Restored Republic
Hardworking People Against AB 928
The adoption and ratification of a new calendar for the United Global Trade Organization
Bend to the Beach Road Initiative
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Proposed REGO price increase for motorcycles
2475 Created: 2024-10-03
Time period | Number of signatures |
---|---|
All time | 2475 |
12 months | 2475 |
"Cap Rates for South Wairarapa: Cap 2025/26 Rate Increase at 3%"
565 Created: 2024-10-16
Time period | Number of signatures |
---|---|
All time | 565 |
12 months | 564 |
Support community safety. Reopen Clive Police Station.
281 Created: 2024-10-21
Time period | Number of signatures |
---|---|
All time | 281 |
12 months | 281 |
Say Yes to Auckland Arena — A home for sport, culture & community.
246 Created: 2025-04-11
Time period | Number of signatures |
---|---|
All time | 246 |
12 months | 246 |
Justice For Cwecwe
1173665 Created: 2025-03-27
Time period | Number of signatures |
---|---|
All time | 1173665 |
12 months | 1173621 |
Petition to stop the erection of new 5G transmitters in Devonport
129 Created: 2024-08-12
Time period | Number of signatures |
---|---|
All time | 129 |
12 months | 122 |
Ban Double Tap Poisoning in Mahia and Demand Safer Bait Execution
116 Created: 2024-12-26
Time period | Number of signatures |
---|---|
All time | 116 |
12 months | 115 |
Cap rates increase for Taupo and Districts
87 Created: 2025-05-07
Time period | Number of signatures |
---|---|
All time | 87 |
12 months | 87 |
Safer speed Hatfields Beach
86 Created: 2025-05-15
Time period | Number of signatures |
---|---|
All time | 86 |
12 months | 86 |
Safer Road Speeds for Martinborough
72 Created: 2025-03-24
Time period | Number of signatures |
---|---|
All time | 72 |
12 months | 72 |
Bring back the eels: Stop habitat destruction in NZ.
45 Created: 2025-05-29
Time period | Number of signatures |
---|---|
All time | 45 |
12 months | 45 |
Petition to Remove Excise Tax on Premium Cigars in New Zealand
33 Created: 2025-05-07
Time period | Number of signatures |
---|---|
All time | 33 |
12 months | 33 |
Adjusted Marking and Consistency for future NCEA exams
30 Created: 2024-11-06
Time period | Number of signatures |
---|---|
All time | 30 |
12 months | 30 |
Please sign the petition to halt rates increases by the New Plymouth Dustrict Council which are forcing people out of their homes and off of their properties. The NPDC is incompetent.
24 Created: 2024-11-21
Time period | Number of signatures |
---|---|
All time | 24 |
12 months | 24 |
Bring Seventeen to Australia
782 Created: 2024-08-06
Time period | Number of signatures |
---|---|
All time | 782 |
12 months | 269 |
SAVE Segar House - 50 years of mental health support proposed to CLOSE
24 Created: 2025-05-23
Time period | Number of signatures |
---|---|
All time | 24 |
12 months | 24 |
Justice For Cwecwe
33299 Created: 2025-03-28
Time period | Number of signatures |
---|---|
All time | 33299 |
12 months | 33298 |
People of New Zealand opposed to WHO Pandemic Treaty 28/05/22
983 Created: 2022-05-20
Time period | Number of signatures |
---|---|
All time | 983 |
12 months | 14 |
Request for Postponement of Aerial Herbicide Spraying near Huanui College
14 Created: 2024-10-22
Time period | Number of signatures |
---|---|
All time | 14 |
12 months | 14 |
Parakai and Helensville Community Member
12 Created: 2025-06-12
Time period | Number of signatures |
---|---|
All time | 12 |
12 months | 12 |