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WE WANT Neurofibromatosis TO BE RECOGNIZED AS A CONDITION

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Anonymous#1 Sep 14, 2013, 16:04

my daughter

my daughter almost died after a fair ride due to a tumour in her neck .. was never told it could happen
Guest#2 Sep 14, 2013, 16:05
we need more support for all of us we all get scared and very low talking helps not to give medical advice but to share our experience's with each other
Tattyted#3 Sep 14, 2013, 16:06

Neurofibromatosis

if we all get together we can archive this
Guest#4 Sep 14, 2013, 16:31
Please help we are in pain all the time nf1 and 2
Guest#5 Sep 14, 2013, 17:41
More information needs to be put out there about NF!
Too many do not know what it is!
Guest#6 Sep 14, 2013, 18:56
its about time
Guest#7 Sep 16, 2013, 12:41
a progressive condition which can lead to many other health problems
Guest#8 Nov 01, 2013, 03:00
For my little girl, diagnosed NF1, March 2013 at age 4.
Redditch United FC#9 Nov 01, 2013, 14:20

Please sign

Please sign our petition, it would be greatly appreciated - cheers
http://www.petitions24.com/redditch_united_refused_relocation
Guest#10 Nov 01, 2013, 15:18
I have NF(1) I really getting tired of the suffering of my condition of NF(1) I hope they a Cure..
Guest#11 Nov 01, 2013, 15:22
Please recognize this genetic disorder. people are suffering and we need to find a cure with research.
Guest#12 Nov 03, 2013, 15:49
My daughter has the spots, and my fiancee has it so does his family.
Guest#13 Nov 08, 2013, 10:15
o all my NF ladies in uk .... who up for doing a Calendar Girls type thing next year to raise awareness need 12 at least lol i dont mean naked but doing things for each month with facts about nf on each month need help tho as cant do it alone even get kids in it
Guest#14 Apr 11, 2014, 15:41
I have NF2 so I know and feel everything

This comment has been removed by the site administration.

Guest#16 Jun 06, 2015, 18:17
I HAVE NEUROFIBROMATOSIS HAD A TUMOUR ON THE OPTIC NERVE AND HAD IT REMOVED BUT FEFT ME BLIND IN ONE EYE AND WITH EPLESEPY HAVE TWIN GIRLS IN 1972 ONE IS FREE FROM IT BUT THE 0THER HAS THE MARKS AND TUM0URS HOPE THIS HELPS THE PETITION
SANDY#17 Jun 06, 2015, 18:26

NEUROFIBROMASTSIS

MORE SHOULD BE DONE TO RECONIZE THE COMPLAINT  HAVE TWINS GIRLS IN 1969 ONE IS FREE AND THE OTHER HAS IT AND WAS A SLOW LEARNER  I HAVE AS WELL MY FATHER HAD THE BIRTHMARKS HOPE THIS HELPS

Pretty#18 Dec 11, 2015, 16:24

Yes please I wish that thise conditions go recognised.I am an NF1individual, and currently living in Germany, I was surprised to meet people who don't understand what I have on me and what I go through. ...but anyway i still have to move on strengthening myself through Faith in God..no matter what..He is still my God and He loves mi while no one else in the world understands me fully