Help us save 9 children with MPS in SA
Contact the author of the petition
This discussion topic has been automatically created of petition Help us save 9 children with MPS in SA.
|
Guest |
#12014-05-15 14:28It is about time that MPS gets recognition. Thanks Rare Diseases SA!! |
|
| |
|
Guest |
#22014-05-15 15:32Thank you Rare Diseases South Africa for this oportunity to stand up and show a voice. MPS needs serious recognition. |
|
| |
|
Guest |
#32014-05-15 16:30My child is the one getting funding. We are forever grateful. The quality of her life improved dramatically due to treatment. Please give the same gift of life to other children. More children on treatment means greater negotiation power to reduce cost. |
|
| |
|
Guest |
#42014-05-15 16:55please support this cause. |
|
| |
|
Guest |
#52014-05-15 17:29It's sad that we have to do this to get much needed help to these poor kids. I think all who try resolve the matter are wonderful! |
|
| |
|
Guest |
#62014-05-15 18:29It is a total disgrace in these modern times that treatment for all life threatening diseases is not covered either by medical aids or by the Government. If it was your child, you would fight for their right to have the medical treatment to save them or make their lives easier. Sharon Evans. |
|
| |
|
Guest |
#72014-05-16 03:51There are so many diseases where there is no treatment, yet this one does. You cannot place a price on a child's head! Medical aids and government need to assist these families and pay for the medication! |
|
| |
|
Guest |
#82014-05-16 06:12what else would you expect from goverment. only offials with criminal records are worth saving in the eyes of selfish leaders. how far have we strayed from Gods calling to heal the sick raise the dead and fullfill his kingdom, lets put our efforts to better use let us turn our faith back to the original healer Jesus. |
|
| |
|
Guest |
#92014-05-20 12:56Surely the government can afford to take care of these people. I appeal to the Minister of Health to lend a helping hand to the families by paying the medical bills for these sick people. Nkateko Mashaba |
|
| |
|
Guest |
#102014-05-23 13:24These children did not ask for this. As responsible adult it is our duty to help them. So do the right thing and support this cause. |
|
| |
|
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Save the McDougall as our Museum of Historical Art
1308 Created: 2022-12-02
| Time period | Number of signatures |
|---|---|
| All time | 1308 |
| 12 months | 631 |
STOP CHEMTRAILS NZ
179 Created: 2026-01-17
| Time period | Number of signatures |
|---|---|
| All time | 179 |
| 12 months | 179 |
Proposed REGO price increase for motorcycles
2553 Created: 2024-10-03
| Time period | Number of signatures |
|---|---|
| All time | 2553 |
| 12 months | 114 |
Bring back the eels: Stop habitat destruction in NZ.
45 Created: 2025-05-29
| Time period | Number of signatures |
|---|---|
| All time | 45 |
| 12 months | 45 |
Keep Toastmasters Accessible: Reconsider the 75% Pathways Cost Increase
41 Created: 2026-05-04
| Time period | Number of signatures |
|---|---|
| All time | 41 |
| 12 months | 41 |
Remove NZ from WHO
27 Created: 2026-01-26
| Time period | Number of signatures |
|---|---|
| All time | 27 |
| 12 months | 27 |
Safer speed Hatfields Beach
87 Created: 2025-05-15
| Time period | Number of signatures |
|---|---|
| All time | 87 |
| 12 months | 26 |
NRL FOR MND
286 Created: 2026-05-21
| Time period | Number of signatures |
|---|---|
| All time | 286 |
| 12 months | 286 |
SAVE Segar House - 50 years of mental health support proposed to CLOSE
25 Created: 2025-05-23
| Time period | Number of signatures |
|---|---|
| All time | 25 |
| 12 months | 14 |
📜 PETITION TO THE PARLIAMENTARY COMMITTEE ON THE HEALTH CARE COMPLAINTS COMMISSION (HCCC)
2019 Created: 2025-07-15
| Time period | Number of signatures |
|---|---|
| All time | 2019 |
| 12 months | 2018 |
Parakai and Helensville Community Member
12 Created: 2025-06-12
| Time period | Number of signatures |
|---|---|
| All time | 12 |
| 12 months | 12 |
Banning of fireworks
35 Created: 2024-01-02
| Time period | Number of signatures |
|---|---|
| All time | 35 |
| 12 months | 13 |
Upgrade Cox’s Bay Basketball Court and Calisthenics Station
9 Created: 2026-04-29
| Time period | Number of signatures |
|---|---|
| All time | 9 |
| 12 months | 9 |
Open Letter of scientists and entrepreneurs regarding MFF and FP10
845 Created: 2025-06-10
| Time period | Number of signatures |
|---|---|
| All time | 845 |
| 12 months | 843 |
Justice for Maya
227158 Created: 2025-11-09
| Time period | Number of signatures |
|---|---|
| All time | 227158 |
| 12 months | 226948 |
AN OPEN LETTER TO SENATOR ALAN PETER CAYETANO
3014 Created: 2026-05-16
| Time period | Number of signatures |
|---|---|
| All time | 3014 |
| 12 months | 2985 |
Save Bollywood Farms
1241 Created: 2026-04-02
| Time period | Number of signatures |
|---|---|
| All time | 1241 |
| 12 months | 1241 |
Say No to Data Center destroying our communities!
353 Created: 2025-08-29
| Time period | Number of signatures |
|---|---|
| All time | 353 |
| 12 months | 353 |
No Bail For Rob Evans #JusticeForVanessa
757 Created: 2025-06-23
| Time period | Number of signatures |
|---|---|
| All time | 757 |
| 12 months | 757 |
Get Gorgon City to the South Island of NZ!
5 Created: 2026-04-07
| Time period | Number of signatures |
|---|---|
| All time | 5 |
| 12 months | 5 |