LetLiamLive
Our little Liam has SMA - Spinal Muscular Astropy - ISIS Pharmaceuticals has an experimental drug called SMNRx that can save his life! We using this petition to pressure ISIS into allowing them to have the three experimental doses of SMNRx for Liam - the sooner the better as it is imperative that he be treated early on. Special authorization for this treatment has been granted to the family through Health Canada and the SAP program. HOWEVER - ISIS has not accepted the authorization! This petition is asking ISIS to PLEASE ACCEPT for Liam to receive this very important medication ASAP!
Notre petit Liam est atteint d'Amyotrophie Spinale, une maladie génétique dégénérative qui lui donne une espérance de vie de deux ans. La pharmaceutique Isis expérimente un composé prometteur appelé SMNRX, mais refuse de nous le fournir malgré une autorisation spécial octroyé par Santé Canada et son programme PAS!. Cette pétition est un outil pour amener Isis à revoir sa position. S'il vous plaît ISIS, accepter de fournir maintenant à Liam les trois doses expérimentale de SMNRX. Le miracle est encore possible, vous savez ISIS qu'avec l'Amyotrophie Spinale le plus tôt possible est le mieux, en plus de sauver une vie, vous pourriez éviter à Liam des handicaps sévères.
Yan Défossés Contact the author of the petition
Announcement from the administrator of this websiteWe have closed this petition and we have removed signatories' personal information.European Union's General Data Protection Regulation (GDPR) requires a legitimate reason for storing personal information and that the information be stored for the shortest time possible. |
| Log in to manage your petition. |
Petition ad
Promote here
PETITION OPPOSING ARROWHEAD AIRPARK IN CASS COUNTY MISSOURI
WE, THE UNDERSIGNED, HEREBY PETITION the County Commissioners of Cass County, Missouri as follows: WE STATE AND BELIEVE: Arrowhead Airpark, LLC filed applications with Cass County to build an airport and residential complex at E. 203rd St. and S. Prospect Ave. in South Belton Missouri. The Arrowhead Airpark applications propose: A 3,000-foot paved and lighted runway 95 airplane hangars (52 with homes and 43 with apartments) on only 159 acres This project would create urban-level density in a r...
Petition ad
Promote here
Keep the Saturday evening jazz concerts at the Roxbury Library
We the undersigned have been audience members at the Makanda Project concerts at the Roxbury Branch Library. Some of us started attending the concerts as far back as 2008, when they began; some of us have discovered them more recently. We all appreciate the great uniqueness of having music of such high quality available for free in such a welcoming community setting. We understand that in order to continue receiving funding from the Fellowes Athanaeum Trust Fund, the Makanda Project has been ask...
Petition ad
Promote here
Oppose Islamophobia Definition
We the undersigned oppose any government definition of so-called ‘Islamophobia’. We assert our freedom to expose and oppose the errors and violence of the Islamic religion and to bring the truth of the Gospel to Muslims. We deplore the inherent bias of the Government ‘Working Party on Anti-Muslim Hatred / Islamophobia’ in which every member is either a Muslim activist or, in the case of its chairman, Dominic Grieve KC, an apologist for Islam. We are dismayed that the sole focus of the ‘Working...
Petition ad
Promote here
📜 PETITION TO THE PARLIAMENTARY COMMITTEE ON THE HEALTH CARE COMPLAINTS COMMISSION (HCCC)
Regarding Misconduct, Jurisdictional Overreach, and Breaches of the Law in the Case of Dr My Le Trinh This petition supports a formal submission already made to the NSW Parliamentary Committee on the Health Care Complaints Commission under section 65 of the Health Care Complaints Act 1993 (NSW). It raises systemic concerns about regulatory misconduct and calls for urgent oversight. All facts referred to are drawn from publicly available documents and proceedings. To: The Committee on the Health...
Petition ad
Promote here
Relocate The Shed
Neighborhood impact studies are conducted before a project can begin. The Department of Public Works never conducted one. We need for the Public Works Department to remove the food shed to their facilities, until a neighborhood impact assessment has been completed ...
Petition ad
Promote here
Cancel NPC's Car Park Management Contract in GMV West
The Issue The leaseholders of Greenwich Millennium Village (GMV) feel strongly that the decision to have parking enforcement in our private car parks—specifically those in Holly Court, Maurer Court, Metcalfe Court, and Moseley Row—was made without proper consultation with us. This lack of dialogue and transparency has resulted in a management system that does not align with the interests and needs of our community. One of the primary reasons for our concern is the imposition of parking enforceme...
Petition ad
Promote here
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, Ohio
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, We, the undersigned, residents and concerned citizens of Fairfield Township and Madison County, Ohio, respectfully submit this petition to oppose the installation of a biodigester facility at Wilson Rd. While we recognize the value of renewable energy, the proposed location raises serious concerns about environmental impact, public safety, and local infrastructure. These concerns include air a...
Petition ad
Promote here
Proclamation for a Restored Republic
My fellow citizens, (Read or listen to the video on Substack - https://open.substack.com/pub/anonymous8675309/p/nows-the-time-no-more-excuses?r=5c59m0&utm_medium=ios We stand today at a critical juncture in history—one where the essence of liberty, the integrity of our nation, and the preservation of our rights as free individuals are at stake. This proclamation is not merely a declaration; it is a profound affirmation of who we are as a people, of the principles that have guided our natio...
Petition ad
Promote here
Hardworking People Against AB 928
Assembly Bill 928 is a reckless, poorly written legislative proposal. Whether it's for breeding, showing, rescuing, or keeping roosters for personal, cultural, or spiritual reasons, this bill undermines our way of life. It affects thousands across the state who cherish and maintain these animals as an integral part of our lives. Assembly Bill 928, under the guise of regulating cockfighting, does not distinguish between illegal activities and responsible rooster ownership. Legitimate breeders an...
Petition ad
Promote here
The adoption and ratification of a new calendar for the United Global Trade Organization
To whom it may concern, I hope this article finds you well. **The Case for a New Calendar System Based on a Deck of Cards** The current Gregorian calendar, though widely accepted and functional, has long been criticized for its irregularities and inconsistencies. Months vary in length from 28 to 31 days, making planning and scheduling less intuitive. Adopting a new calendar system with "twelve plus one" months of 28 days each, and an additional "transition day" at the end of the year—would br...
Petition ad
Promote here
Add petition "LetLiamLive" to this listBend to the Beach Road Initiative
IMPORTANT: PLEASE READ AND SIGN THE PETIION IF YOU ARE IN SUPPORT OF THIS PROJECT AND IF YOU WOULD BE WILLING TO PAY A TOLL. OUR GOAL IS TO GET 500 SIGNATURES BY AUGUST 1ST. THANK YOU. There was another head-on collision a few weeks ago on the 85 between Gilo Bend and Ajo. This is happening too often and there have been many fatalities over the years. People speed in a hurry to get to Rocky Point or to make the border in time. As well, there are often very slow vehicles causing a back up and...
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Proposed REGO price increase for motorcycles
2475 Created: 2024-10-03
| Time period | Number of signatures |
|---|---|
| All time | 2475 |
| 12 months | 2475 |
"Cap Rates for South Wairarapa: Cap 2025/26 Rate Increase at 3%"
565 Created: 2024-10-16
| Time period | Number of signatures |
|---|---|
| All time | 565 |
| 12 months | 564 |
Support community safety. Reopen Clive Police Station.
281 Created: 2024-10-21
| Time period | Number of signatures |
|---|---|
| All time | 281 |
| 12 months | 281 |
Say Yes to Auckland Arena — A home for sport, culture & community.
246 Created: 2025-04-11
| Time period | Number of signatures |
|---|---|
| All time | 246 |
| 12 months | 246 |
Justice For Cwecwe
1173647 Created: 2025-03-27
| Time period | Number of signatures |
|---|---|
| All time | 1173647 |
| 12 months | 1173602 |
Petition to stop the erection of new 5G transmitters in Devonport
129 Created: 2024-08-12
| Time period | Number of signatures |
|---|---|
| All time | 129 |
| 12 months | 128 |
Ban Double Tap Poisoning in Mahia and Demand Safer Bait Execution
116 Created: 2024-12-26
| Time period | Number of signatures |
|---|---|
| All time | 116 |
| 12 months | 115 |
Cap rates increase for Taupo and Districts
87 Created: 2025-05-07
| Time period | Number of signatures |
|---|---|
| All time | 87 |
| 12 months | 87 |
Safer speed Hatfields Beach
86 Created: 2025-05-15
| Time period | Number of signatures |
|---|---|
| All time | 86 |
| 12 months | 86 |
Safer Road Speeds for Martinborough
72 Created: 2025-03-24
| Time period | Number of signatures |
|---|---|
| All time | 72 |
| 12 months | 72 |
Bring back the eels: Stop habitat destruction in NZ.
45 Created: 2025-05-29
| Time period | Number of signatures |
|---|---|
| All time | 45 |
| 12 months | 45 |
Petition to Remove Excise Tax on Premium Cigars in New Zealand
33 Created: 2025-05-07
| Time period | Number of signatures |
|---|---|
| All time | 33 |
| 12 months | 33 |
Adjusted Marking and Consistency for future NCEA exams
30 Created: 2024-11-06
| Time period | Number of signatures |
|---|---|
| All time | 30 |
| 12 months | 30 |
Bring Seventeen to Australia
782 Created: 2024-08-06
| Time period | Number of signatures |
|---|---|
| All time | 782 |
| 12 months | 305 |
Please sign the petition to halt rates increases by the New Plymouth Dustrict Council which are forcing people out of their homes and off of their properties. The NPDC is incompetent.
24 Created: 2024-11-21
| Time period | Number of signatures |
|---|---|
| All time | 24 |
| 12 months | 24 |
SAVE Segar House - 50 years of mental health support proposed to CLOSE
24 Created: 2025-05-23
| Time period | Number of signatures |
|---|---|
| All time | 24 |
| 12 months | 24 |
Justice For Cwecwe
33299 Created: 2025-03-28
| Time period | Number of signatures |
|---|---|
| All time | 33299 |
| 12 months | 33298 |
People of New Zealand opposed to WHO Pandemic Treaty 28/05/22
983 Created: 2022-05-20
| Time period | Number of signatures |
|---|---|
| All time | 983 |
| 12 months | 15 |
Request for Postponement of Aerial Herbicide Spraying near Huanui College
14 Created: 2024-10-22
| Time period | Number of signatures |
|---|---|
| All time | 14 |
| 12 months | 14 |
Parakai and Helensville Community Member
12 Created: 2025-06-12
| Time period | Number of signatures |
|---|---|
| All time | 12 |
| 12 months | 12 |
Petitions.nz
We provide free hosting for online petitions. Create a professional online petition
by using our powerful service. Our petitions are mentioned in the media every day, so creating a petition is a great way to get noticed by the
public and the decision makers.